POF Awareness Campaign

Calling all POFers! With your help, we can spread the word to local health care providers about the latest information on POF! Part of our IPOFA Mission, is
“… increase public awareness and understanding of POF; and to work with health care professionals to better understand this condition.” We can help raise the level of awareness and education in our hometowns by passing along to our medical communities at home available POF resources. Many of us were not accurately and/or quickly diagnosed, often due to providers not having the latest available information and resources about POF, which has been a factor in prompting us to launch our new awareness campaign.

Volunteers for the Awareness Campaign will have their names entered into a drawing to win a FREE copy of our new book, Faces of POF!

Our Awareness Campaign involves delivering (via in person-usually most effective method, US mail, or email) POF resources and information to women’s specialists/ health care providers in your area who may be MDs, Nurse Practitioners, or Physician Assistants. Someday, pending funding approval for our awareness/ education campaign, our vision is to have the resources to distribute all applicable POF information out to each and every general health care practitioner, women’s health specialist, gynecologist, endocrinologist, and reproductive endocrinologist currently in practice.

The resources are listed below. Please print out (or call to order free copies of) the NIH publication, Do I have Premature Ovarian Failure? (#2,) along with printing copies of the POF Fact Sheet (#1,) and if applicable, some of the other resources available to patients and providers regarding participation in NIH research studies. An alternative to printing out individual copies would be to just distribute electronically the POF Resource and Information list below, from which the providers could click on the links themselves to download.

Thank you in advance to all of you who participate--this is an important movement we are beginning, and its success will be due to each and every one of you who decide to join the campaign to help increase POF Awareness! Together, we CAN make a difference!

Premature Ovarian Failure (POF) Resources and Information

• IPOFA - http://wwwpofsupport.org
  
  POF Fact Sheet
  Information in English
  Información en Español
  Information in German
  Information in Italian
  Information in Japanese
  Information en Français
  
  
• U.S. Department of Health and Human Services, Public Health Service, National Institutes of Health, NICHD Information Resource Center, Do I have Premature Ovarian Failure? NIH pub. No. 03-5159, August 2003.
  You can order free copies by calling 1-800-370-2943, and it’s also available for download at http://www.nichd.nih.gov/publications/pubs/pof/premature_ovarian_failure.pdf
  
  
• *NIH Clinical POF Research Study Information:
  
  Letter to Physicians and Health Care Providers (from NIH*): Free Consultations Available for Your Patients with Spontaneous Premature Ovarian Failure
  http://eclipse.nichd.nih.gov/nichd/deb/geuPOF/recruitmentPOF.pdf
  
  Letter to Patients (from NIH*): Free Consultations Available for Women with Spontaneous Premature Ovarian Failure
  http://eclipse.nichd.nih.gov/nichd/deb/geuPOF/patientInfoForm.pdf
  
  Hormone Replacement in Young Women with Premature Ovarian Failure
  Number: 00-CH-0045 http://clinicalstudies.info.nih.gov/detail/A_2000-CH-0045.html
  
  Ovarian Follicle Function in Patients with Premature Ovarian Failure
  Number: 91-CH-0127 http://clinicalstudies.info.nih.gov/detail/A_1991-CH-0127.html
  
  Autoimmune Premature Ovarian Failure: A Controlled Trial of Alternate-Day Prednisone Therapy
  Number: 92-CH-0223 http://clinicalstudies.info.nih.gov/detail/A_1992-CH-0223.html
  
  Feasibility Study for Development of an Early Test for Ovarian Failure: FSH-Stimulated Inhibin B as a Marker for Early Ovarian Insufficiency
  Number 00-CH-0189 http://clinicalstudies.info.nih.gov/detail/A_2000-CH-0189.html